Living on the Edge: Navigating life without statutory support in the UK

In the UK, there is a growing population of people who find themselves ‘living on the edge’ of services. These individuals are not entitled to statutory support, yet they have needs that cannot be ignored. Whether they are people with a disability or neurodivergence, older people, those with mental health challenges, young people, migrants or refugees, their lives are marked by uncertainty and difficulty as they struggle to access the help they need. For many, the voluntary sector becomes the only lifeline in an environment where statutory services fall short.

Our research project ‘Living on the Edge’ aims to shine a light on the ‘edges’ people experience and the vital work of voluntary sector organisations in supporting them.

To better understand where the most pressing needs lie, we recently put out a call for evidence from these organisations, and what we’ve heard so far paints a sobering picture.

Advocacy organisations as information gateways

One of the most striking findings from our conversations with voluntary sector organisations is the critical role of advocacy services. Many individuals simply do not know what help is available to them, or how to access it. Language barriers, literacy challenges, and lack of awareness can create formidable obstacles for those seeking support.

Advocacy organisations are stepping in to bridge this gap. Often, they are becoming not just a voice for the voiceless, but also information-sharing hubs, helping people navigate the complex web of support services. This might involve connecting someone to an emergency food bank, providing information on housing rights, making phone calls, or helping fill out essential paperwork.

Living on the Edge: A multi-faceted struggle

Our conversations with other projects and service providers reveal a common theme: people with intersecting statuses, such as being both a migrant and disabled, are particularly vulnerable to being on the ‘edge’ and falling through the cracks. They may not meet the criteria for traditional support services, leaving them in a precarious situation.

For instance, a family with a disabled child who has recently migrated to the UK might find themselves ineligible for certain types of statutory support due to their immigration status. They may struggle to access adequate healthcare, suitable housing, or financial assistance, despite being in desperate need. The voluntary sector often becomes their only refuge, but these organisations are frequently overwhelmed, underfunded, and unable to provide long-term solutions.

This reality leaves families living on the edge, constantly worried about their future. Without a safety net, they are forced to rely on community support, local charities, and advocacy organisations to meet even their most basic needs. The work of these voluntary groups is invaluable, but it is also a stark reminder of the gaps in our social support systems that urgently need addressing.

A call for evidence: We need your stories

To build a more comprehensive understanding of the experiences of those living on the edge, we need to hear more voices. We are calling on organisations, community groups, and individuals to come forward and share their experiences with us. Your insights are crucial to shaping our project and advocating for better support structures for those who are currently falling through the gaps.

If you are an organisation that works with migrants, refugees, or people with disabilities, or if you have personal experience of navigating life without statutory support, we want to hear from you. Your stories can help us identify where the most pressing needs are and highlight the innovative ways the voluntary sector is stepping in to help.

How to get involved

• Share your experiences: Contact us to share your experiences and insights. Your input can help inform future support services and policy recommendations.
• Spread the word: If you know of others who are facing similar challenges, encourage them to come forward and add their voices to the conversation.
• Join the conversation: Reach out to our team to discuss how we can collaborate and advocate for those living on the edge.

Find out more and contact us about Living on the Edge.

By raising awareness and building a network of support, we can work towards a society where everyone has access to the help they need, regardless of their circumstances. Your stories and experiences are the foundation for change—let’s make sure they are heard!